Two-year-old Clementine is finally home after her miraculous recovery.

She got the go-ahead from her doctors after spending 16 months at the Ronald McDonald House in St. Louis.

>> McCandless toddler with rare gene mutation cleared to come home after treatment

Clementine is just one of 10 people diagnosed with a rare condition, a mutation in the TLR8 gene. Clementine’s mother Tanner Blackham said it’s surreal to be back.

“We left here feeling pretty confident that we were going to leave with a healthy baby and a baby that had passed and now driving home, with two healthy toddlers in the back of our car was the best feeling ever,” Tanner Blackham said. Clementine’s mother.

We have been following Clementine’s story since she was 8 months old. Her family originally expected to stay in St. Louis for about three months.

“Throughout the 100 days, those were probably the hardest and scariest days when we were doing her chemo and radiation and her transplant,” Blackham said.

Clementine received a life-saving bone marrow transplant from an anonymous donor in Europe. The family planned to come home around this time last year, but she caught a cold and set them back a whole year.

“After that setback with the cold, we played this upside-down game every day, we’d be thankful she was alive but scared for the rest of the day,” Blackham said.

Blackham has documented their journey online. They weren’t sure Clementine would make it. There were months of uncertainty. In recent months, Blackham said they received good news. Clementine’s labs have been stable and she is expected to live a long life.

Clementine’s dad Tim Blackham said they really appreciate all the support from the community. They are also very grateful for Clementine’s doctor.

“Our doctor who is a great soul, he cured the incurable,” Blackham said.

Right now, Clementine remains isolated and is still on many medications. She will need to go to St. Louis every two months for follow-up treatments. Blackham said they hope Clementine’s story helps the next family.

“The next family is not so in the dark about what this diagnosis looks like or the outcome of this diagnosis might be,” Blackham said.

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